Thursday, August 6, 2015

Try & Try Again: Sam Vogelstein & CBD

Fred Vogelstein wrote about his son's epilepsy in a fine 2010 New York Times Magazine article. That piece,  "Epilepsy's Big Fat Miracle," focused on the high-fat ketogenic diet; Fred's son Sam, who was nine years old at the time, had once been buffeted by hundreds of  absence seizures a day. Medications weren't helping. The ketogenic diet, described by Vogelstein as a "desperate" treatment, seemed to work. He was only having about six seizures a day. Sam was finally "a happy, healthy, and independent kid," Fred wrote. Hence the Big Fat Miracle;  Sam's life was back on track.

In the July 2015 issue of WIRED, though, Sam and Fred are back on the therapy trail in a piece titled "One Man's Desperate Quest to Cure His Son's Epilepsy--With Weed."  Between the two features, Sam's seizures returned again. With a vengeance. This time, having tried everything else, they head off to London, in 2012,  to try another desperate treatment: this one is an extract of the marijuana plant known as cannabidiol, or CBD. The compelling piece is largely about the hoops the Vogelsteins have to go through to try the compound at all.

"It had taken four months of phone calls, emails, and meetings with doctors and pharmaceutical company executives on two continents to get permission to try this drug," writes Fred. "Sam wasn’t joining an ongoing clinical trial. The company made the pills just for him" By the time the Vogelstein's win approval from the DEA to import CBD into the US, they have spent more than $120,000 of their own money on the effort. Their expense and efforts seem to have paid off. Both for Sam, whose seizures are again under control, and for many others who still suffer from medication-resistant epilepsy in the US. Sam's story seems to have helped pave the way for several sizable studies of CBD in major US research centers. A CBD-based drug made by the British company GW Pharmaceuticals may be on the shelves less than three years from now.

8 comments:

Makaya said...

HOW MY CHILD WAS CURED FROM EPILEPSY

I am sharing this story as a mother. It could help mothers out there who their love ones are going through pains from seizures. My baby girl was 4 years old when she had 7 episodes of epileptic seizures for straight 8 months. Six episodes were with fever and 1 seizure without fever. We used Valparin twice a day but my baby seizures got worse and she developed other health complications. My child was going through pain and I was afraid of leaving her alone to herself so I constantly watched her. Nothing hurts a mother like seeing her child cry and go through pains which is not her own making.
To help my child overcome these frequent traumas, I went in search of medication outside the English medications we had used without result. I was lucky to read in the internet about a mother whose 15 years old child was cured from epilepsy through herbal medication. I contacted the doctor through an email address I got from a testimony shared on the internet. I used his medication for my baby and the seizures stopped. I wanted to make sure that it has cured my child, so we went for EEG and MRI scan all reports showed normal!. My baby girl is 7 years seizure free., and I am happy to tell it to the world, that there is a cure! Don't give up on that situation. You may contact Mohan, where I found a cure for my child via drajaymohanbose@gmail.com

Peter Emmily said...

I myself have epilepsy. Not to this extreme with grand mail seizures daily, but it still affects me in other ways daily. I am on medicine, which has slowly stopped working and I notice my twitches, blank stares, and memory loss (even in the midst of a sentence) starting to return. The side effects of this drug is noticeable and painful to deal with. It is so strong that if a normal person were to take my dose, they will die of an overdose.when i was going through the internet i come across Owens post thanking Dr Lewis hill for curing his seizure problem, and i got the contact of Dr Lewis hill and i quickly contacted him then he made me to know that the medication is 100% cure, and that was how i got the medicine which i used, after which i went for medical test It worked! Over a year now, i have not show any symptoms of seizure and I believe that am cure permanently if you need his help email him on drlewishill247@gmail.com

Jessical Alba said...

ALL THANKS TO DR WILLIAMS FOR THE GREAT DEED HE HAVE DON FOR MY FAMILY.This information will be useful for Epilepsy patients who is willing to use herbal medicine. My daughter had temporal lobe epilepsy, She had seizure and had a grand mal with rage episode. Our daughter's seizure is constant throughout the day. We had used several medicine which include: Epilim and Keppra, experience seizure control at the cost of serious debilitating side effects. It was during a casual conversation with a friend that I learned about herbal Dr. William,who uses herbal medicine in curing people from epilepsy,i was so glad to contact him on his email and make an order for his medication, it does not have any side effect. I am so glad to say that she has been seizure-free since July 2015 after taking William medicine. this a miracle cure?contact him for more detail (drwilliams098675@gmail.com) thanks once again admin for such an informative blog.

PAUL said...

NATURAL & EFFECTIVE TREATMENT TO SEIZURE: Our son has temporal lobe epilepsy, He has seizure and had a grand mal with rage, Our son's seizure always occur twice in a week according to EEG results. We had used several medicine which include: 600 Epitol 100 Zarontin,
150 Epitec X2 Daily, Topomax lasted for about 3 days, but I put an end to that due to my son losing weight and being lethargic. I recently got dr williams herbal medicine,that's a natural medicine that cure my son Epilepsy with no side effect. It is an herbal medicine. it is a permanent cure and effective treatment of Epilepsy, for more info, you can also contact Dr.William with this email drwilliams098675@gmail.com for advice and his product

Tonya Marie ward said...

My son was diagnosed with epilepsy at the age of six and had become quite recluse, I was terrified. “His seizures have never been fully controlled as he had grand mal seizures, collapsing and twitching on the ground. As a little kid, I find each one haunting—as if some outside force has taken over his body, leaving me, the person who is supposed to protect him, powerless. It was 2012 and over the previous three years I had spent more time in hospital than out of hospital. This point in time was, looking back, perhaps the low point of my life. After nine years we were out of options. We met with his Doctor to get permission to try a herbal treatment as we needed to end all Conventional Medications. Though we didn't know if it Would make him vomit or become dizzy, or give him a rash or cause some other unpleasant event like some medics he used to take? We didn't know. We’d volunteered to give a trial for him to live a better life. We were confident the medicine wouldn't kill him or hurt him irreversibly, but the prospect still made us nervous. Although family and friends may feel this is a loss of the person they knew, the illness can be treated and a good outcome is possible as it all got better when we started using a herbal medicine for him.

My recommendation to people who are either wondering if they have epilepsy or wondering if a friend or loved one has epilepsy should contact aparajitatan@gmail.com. I think one of our key problems was that we didn't do this in the early days of my Son's illness as we never thought of a natural alternative for him.

delisha julia said...

"With Dr Williams,herbal medicine I felt very empowered after my son started his medication and the results came very quickly I might add. Contrary to what my doctor had recommended for my son, (that epilepsy have no permanent cure) I have succeeded in less than 4 weeks to treat all the symptoms associated with my son epilepsy (including the anxiety , and the abnormal behavior ) and within 4 weeks, my son epilepsy was completely gone. Thank you so much for this terrific publication. I also my son have recently experienced a symptom-free of headache , which was nothing short of remarkable, considering the awful state my son was in before I was introduced to dr williams life changing medication,for more information on how to get his medicine you can email him in drwilliam098675@gmail.com

Jessical Alba said...

ALL THANKS TO DR WILLIAMS FOR THE GREAT DEED HE HAVE DON FOR MY FAMILY.This information will be useful for Epilepsy patients who is willing to use herbal medicine. My daughter had temporal lobe epilepsy, She had seizure and had a grand mal with rage episode. Our daughter's seizure is constant throughout the day. We had used several medicine which include: Epilim and Keppra, experience seizure control at the cost of serious debilitating side effects. It was during a casual conversation with a friend that I learned about herbal Dr. William,who uses herbal medicine in curing people from epilepsy,i was so glad to contact him on his email and make an order for his medication, it does not have any side effect. I am so glad to say that she has been seizure-free since July 2015 after taking William medicine. this a miracle cure?contact him for more detail (drwilliams098675@gmail.com) thanks once again admin for such an informative blog.

Sadhna Vats Vats said...

CURE TO EPILEPSY WITHOUT ANY SIDE EFFECT: My son was diagnosed with epilepsy. My son epilepsy was something i don't understand he cry so bad that he was usually in bed for about 8 hours and soreness killers (even prescription strength) don't stop the crying (except taking him out) even if he take triple the dosage. my son symptoms was really so bad,that we have to make hospital our home, and all the doctors would do is monitor it, prescribe him countless of control pills and pain medication with no positive result. until recently I contacted a Doctor who put an end to this problem. If you are having same problem with epilepsy son contact Dr. William for advice and possible solution without any side effect (drwilliams098675@gmail.com