Thursday, August 6, 2015

Try & Try Again: Sam Vogelstein & CBD

Fred Vogelstein wrote about his son's epilepsy in a fine 2010 New York Times Magazine article. That piece,  "Epilepsy's Big Fat Miracle," focused on the high-fat ketogenic diet; Fred's son Sam, who was nine years old at the time, had once been buffeted by hundreds of  absence seizures a day. Medications weren't helping. The ketogenic diet, described by Vogelstein as a "desperate" treatment, seemed to work. He was only having about six seizures a day. Sam was finally "a happy, healthy, and independent kid," Fred wrote. Hence the Big Fat Miracle;  Sam's life was back on track.

In the July 2015 issue of WIRED, though, Sam and Fred are back on the therapy trail in a piece titled "One Man's Desperate Quest to Cure His Son's Epilepsy--With Weed."  Between the two features, Sam's seizures returned again. With a vengeance. This time, having tried everything else, they head off to London, in 2012,  to try another desperate treatment: this one is an extract of the marijuana plant known as cannabidiol, or CBD. The compelling piece is largely about the hoops the Vogelsteins have to go through to try the compound at all.

"It had taken four months of phone calls, emails, and meetings with doctors and pharmaceutical company executives on two continents to get permission to try this drug," writes Fred. "Sam wasn’t joining an ongoing clinical trial. The company made the pills just for him" By the time the Vogelstein's win approval from the DEA to import CBD into the US, they have spent more than $120,000 of their own money on the effort. Their expense and efforts seem to have paid off. Both for Sam, whose seizures are again under control, and for many others who still suffer from medication-resistant epilepsy in the US. Sam's story seems to have helped pave the way for several sizable studies of CBD in major US research centers. A CBD-based drug made by the British company GW Pharmaceuticals may be on the shelves less than three years from now.

1 comment:

Makaya said...

HOW MY CHILD WAS CURED FROM EPILEPSY

I am sharing this story as a mother. It could help mothers out there who their love ones are going through pains from seizures. My baby girl was 4 years old when she had 7 episodes of epileptic seizures for straight 8 months. Six episodes were with fever and 1 seizure without fever. We used Valparin twice a day but my baby seizures got worse and she developed other health complications. My child was going through pain and I was afraid of leaving her alone to herself so I constantly watched her. Nothing hurts a mother like seeing her child cry and go through pains which is not her own making.
To help my child overcome these frequent traumas, I went in search of medication outside the English medications we had used without result. I was lucky to read in the internet about a mother whose 15 years old child was cured from epilepsy through herbal medication. I contacted the doctor through an email address I got from a testimony shared on the internet. I used his medication for my baby and the seizures stopped. I wanted to make sure that it has cured my child, so we went for EEG and MRI scan all reports showed normal!. My baby girl is 7 years seizure free., and I am happy to tell it to the world, that there is a cure! Don't give up on that situation. You may contact Mohan, where I found a cure for my child via drajaymohanbose@gmail.com